IS CHANGING LIVES
From partnerships, to ticket sales and donated auction items, people like you have helped Believing for Bryleigh Foundation (B4B) make an incredible impact on lives touched by Leukodystrophies throught the U.S. Check out what your support has allowed the Foundation to do this past year.
2022 - 2023 grant recipients
WORLDWIDE GRANTS - $45,000
B4B sent $45,000 across the globe this past year to Tunisia, Philippines and India to support =6 different families who are caring for a child with a Leukodystrophy.
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CHRISTMAS BLESSINGS - $35,000
B4B spent $35,000 this past Christmas sending various gifts to families around the country that care for a child with a Leukodystrophy.
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MLD FOUNDATION - $25,000
Click here for their website to learn about all the great things MLD Foundation is doing!
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HUNTER'S HOPE FOUNDATION - $25,000
Click here for their website to learn about all the great things Hunters Hope Foundation is doing!
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BLANCHARD FAMILY - $10,000
A contribution towards a dependable vehicle to help get both their daughter and son, Jordan and Joelle, to and from medical appointments.
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THE SPRAGGINS FAMILY - $10,000
A contribution towards a wheelchair accessible van for their son Sam.
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THE WEBB FAMILY - Featured family at the 2022 B4B Benefit Concert - $5,000
Financial support for anything their son, Owen, needed!
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BOURASSA FAMILY - $10,000
To support the families roof repairs and addressing mold issues to provide a clean and safe environment for their son Josh.
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MYERS FAMILY - $10,000
To support medical and therapy bills as well as contributed towards a more accessible vehicle for their daughter Amelia.
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WEBB FAMILY - Featured family at the 2022 B4B Benefit Concert - $5,000
Financial support for anything their son, Owen, needed!
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PAULA PIENDA - $5,000
To support some basic bills like rent and utilities in an effort to support their son Eli.
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REEDER FAMILY - $5,000
A contribution towards supporting the Reeder Family with bills and rent as they provide for their two children with a Leukodystrophy, Maria & Diego.
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ANNA JAMES - $3,000
To support some basic bills like electricity and car repairs.
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PHOENIX SANDQUIST- $2,500
Support for Phoenix to attend Camp Camp, a magical place where children with disabilities can enjoy a summer camp experience!
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BRIGHTON CENTER - $5,000
Support to the Brighton Center, the larges nonprofit organization in San Antonio providing pediatric therapy services, inclusive education and special education transition services to 4,000+ children every single year.
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2021-2022 grant recipients
JALEN & KYLAR WATERMAN - $2,500
Continued medical care, they are both affected with ALD
SOFIA ANGIULIi- $10,000
Construction for an accessible bathroom
NAOMI HINDMAN-$10,000
Handicapped accessible van
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ALICE CARTER- $5,000
Accessible bike/stroller
HOPE HOSPICE - $2,500
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CHRISTMAS BLESSINGS FOR AFFECTED FAMILIES
B4B spent $30,000 this past Christmas sending various gifts to families around the country that care for a child with a Leukodystrophy.
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MORGAN'S WONDERLAND-$5000
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2019-2020 grant recipients
OWEN WEBB
$5,000 for a therapy dog
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BLAINE SCHEIDER
$5,000 to assist with the purchase of an accessible vehicle
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GIOVANNI & SALVATORE SERENO
$7,000 to assist with the paying of critical medication and past medical bills for the Sereno boys, Giovanni and Salvatore who both have Metochromatic Leukodystrophy (MLD)
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TEAGAN DONNELLY
$5,000 to assist with paying rent and medical bills.
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KORBIN WOOTON
$3,000 to pay for travel for a clinical drug study
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AVERIE WITGEN
$5,000 to assist in the purchase of a wheel chair accessible van
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CHRISTMAS BLESSINGS FOR AFFECTED FAMILIES
B4B spent $15,000 this past Christmas sending various gifts to families around the country that care for a child with a Leukodystrophy.
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HOPE HOSPICE NEW BRAUNFELS
$2,500 to support their annual fundraising gala
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JAMES LUCZAK
$2,500 to support dental work for James. His teeth were affected by late onset MLD.
big news with b4b
Greg Abbott, the Texas Governor declared September 2022 Leukodystrophy Awareness Month
We began the process to add MLD and/or Krabbe to the Texas newborn screening panel in Spring 2023
We started the conversation with a medical team to launch an LCN Center in San Antonio in the very near future.
annual grant recepeints
Hunter'S hOPE & tHE bELIEVING FOR bRYLEIGH fOUNDATION pARTNER uP
The B4B Foundation has formed a major long-term partnership with Hunter's Hope, a 501(C)3 started and run by Jim Kelly, Hall of Fame quarter back for the Buffalo Bills, his wife Jill, and family. Jim's son, Hunter, suffered from a form of Luekodystrophy and passed away at the age of 9. Together, B4B and Hunter's Hope are working to create Luekodystrophy Care Networks (LCN) across the country at major children's hospitals . LCN's will bring uncompromising knowledgeable care close to those that need it and will support families in navigating the stormy waters of life with Luekodystrophy. B4B has donated $325,000 to date.To read more about Hunter's Hope, click here.
B4B's support of the mld foundation is helping families through a compassion fund.
The B4B Foundation continues to work with the MLD Foundation offering not only general operating support but support for The MLD Family Compassion Fund™ a fund that supplies both emergency and significant event based support to families. The MLD Foundation is a 15 year old organization led by volunteers supporting the MLD community through annual conferences, connecting with families, influencing and driving research, and advocacy improving policy at the federal, state and local level for MLD and rare diseases. They recently launched a MLD newborn screening pilot study and are moving toward implementing MLD screening in all state NBS panels. B4B has donated more than $35,000 to date.
To read more about the MLD Foundation, click here.
Believing for Bryleigh foundation scholarship fund at children's hospital of pittsburgh.
The Children's Hospital of Pittsburgh (CHP) has a program dedicated to not only caring for patients with MLD but researching the disease as well. The B4B Foundation has continued to provide a scholarship fund that will help cover the costs of families with a child with MLD to fly to CHP and receive testing, care and support from their first class medical staff.